The first of many.


After much thought and contemplation, I finally decided to put my headaches into words. I won’t bore you with much of my story but I will give you enough information to understand my perspectives. I was diagnosed with Limb Girdle Muscular Dystrophy at the age of 14. I thought being a teenager with a disability sucked but, adulting with a disability sucks 10x more.
Not only with muscular dystrophy but with many other physical disabilities life becomes difficult. Dreams become crushed and what once could have been will now never be. Visions of the future shift in a different direction and independence is stripped from you leaving you exposed in front of many.
Most often times it’s actually the little things that make you break down and cry the most. It’s the fact you want your favorite cereal and there’s no more upstairs or It’s falling and crawling to the toilet to get up but realizing today your just not strong enough to do it on your own. I’ve come to realize as much as I’m effected physically im effected more emotionally.
Growing up, you realize how differently your outlook on life is compared to some who take their health for granted. You realize how different your future looks compared to what you had planned before your diagnosis. You realize you may not even find a partner who is willing to live with your disability.
So this blog is for those who are living their lives a little differently than planned because of any sort of disability.
May we continue to find the silver linings in this different and, beautiful life.

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